Welcome to our Ask Robyn service

Thank you for getting in touch with us about this situation. It is clear that you are concerned about this young person and want to find the right support for them.

Understanding your situation

From what you have shared, it sounds like the young person you are asking about is experiencing difficulties with bladder control related to their disability. This can be challenging for both the young person and the people supporting them.

As our service specialises in supporting children and young people up to the age of 18, we are not the best placed to provide guidance for someone who is 19 years old. However, we hope the following information helps you find the right support.

Seeking the right support

Because this young person is experiencing ongoing difficulties with bladder control, it is important to speak with their GP or the healthcare professionals involved in their care if this has not already happened. They can assess whether there are treatments, continence supports, or specialist services that may help improve their comfort and quality of life.

If the young person is linked with disability services, it may also be helpful to contact their key worker or care team. They may be able to arrange a review of their needs and suggest practical supports or equipment that could make everyday life easier.

As the young person is now an adult, you may also find it helpful to contact Enable Ireland. They provide a range of services and supports for adults with disabilities and their families, and they may be able to guide you towards services available in your local area. You can find more information by visiting enableireland.ie.

Practical steps that may help

In the meantime, you could consider the following:

• Encourage contact with the young person’s GP or healthcare team to discuss the bladder difficulties and any changes that have been noticed.
• Speak with any disability support services involved in their care about continence assessments or specialist advice.
• Contact Enable Ireland to explore what adult disability supports and services may be available locally.
• Continue to approach the situation with patience and respect, recognising that this is something the young person cannot control.

Further support

Although our service is for parents and carers of children and young people aged 18 and under, our Support Line is open Monday to Friday from 9:00am to 1:00pm on 01 522 4300. You can also email [email protected]. If your query relates to a younger child or if you would like help finding appropriate services, we would be happy to speak with you.

Thank you for reaching out to us. We hope you are able to access the right support for this young person. Please take good care of yourself.

Robyn